We have identified organizations dedicated to learning about and recovering from brain injuries. This is not a comprehensive list of all organizations. Our favorites page is intended for those new to the brain injury community and are trying to gain a place to start.
Brainline
BrainLine is a national multimedia project offering authoritative information and support to anyone whose life has been affected by brain injury or PTSD: people with brain injuries, their family and friends, and the professionals who work with them. BrainLine also provides military-specific information and resources on traumatic brain injury and post-traumatic stress disorder (PTSD).
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The Dana Foundation
The Dana Foundation is a private philanthropic organization committed to advancing brain research and to educating the public in a responsible manner about research’s potential: (1) to develop a better understanding of the brain and its functions; (2) to speed the discovery of treatments for brain disorders; and (3) to combat the stigma of brain disorders through education.
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TBI Model Systems - University of Washington
The University of Washington Traumatic Brain Injury Model System is one of 16 government funded model system centers in the United States. The System is a longitudinal study of people who have experienced TBI that seeks to answer questions about recovery from brain injury and what happens to patients after a TBI.
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Family Caregiver Alliance
The mission of Family Caregiver Alliance (FCA) is to improve the quality of life for family caregivers and the people who receive their care. For over 40 years, FCA has provided services to family caregivers of adults with physical and cognitive impairments, such as Parkinson’s, stroke, Alzheimer’s and other types of dementia.
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National Institute of Neurological Disorders and Stroke
The National Institute of Neurological Disorders and Stroke is an Institute within the National Institutes of Health that aims to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disease.
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Centre for Neuroskills
Our purpose is to improve the quality of life for our patients through brain injury rehabilitation. Their education and resources library provides a good framework for understanding brain injuries.
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Headway
Headway, is a charity organization headquartered in England. Their mission is to promote understanding of all aspects of brain injury and provide information, support and services to survivors, their families and careers. In addition, Headway will campaign to reduce the incidence of brain injury. They have tailored their material to be easily integrated for people with brain injuries.
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Brain Injury Association of America
It is the vision of the Brain Injury Association of America (BIAUSA) that everyone in the U.S. who sustains a brain injury is diagnosed, treated, and accepted. Their mission is to advance awareness, research, treatment, and education and to improve the quality of life for all people affected by brain injury.
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Center for Disease Control and Prevention
Center of Disease Control and Prevention (CDC) works 24/7 to protect America from health, safety and security threats, both foreign and in the U.S. CDC defines a traumatic brain injury (TBI) as a disruption in the normal function of the brain that can be caused by a bump, blow, or jolt to the head, or penetrating head injury. Everyone is at risk for a TBI, especially children and older adults
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Who am I To Stop It
“Who Am I To Stop It” is documentary on isolation, art, and transformation after brain injury. It is not designed to be inspirational simply because it features traumatic brain injury survivors. Instead, we look at very difficult questions around loneliness, stigma, poverty, and how people find their way in the world again. The film centers on art not as rehabilitation but as a tool for personal growth, meaningful work, and social change. The idea is to demedicalize disability and disability stories, to explore society’s and families’ responses to life with trauma and acquired invisible disabilities, and to openly address ableism.
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New Day Films
New Day Films is a unique, filmmaker-run distribution company, providing award-winning films to educators, community groups, government agencies, public libraries and businesses since 1971. Democratically run by more than 150 filmmaker members, New Day delivers hundreds of titles that illuminate, challenge and inspire. New Day was initially formed because the women's movement had arrived and a group of independent filmmakers were unable to find a distributor for their feminist films—so they decided to create one.
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Post Concusussion Inc.
Bella Paige is a brain injury advocate and is the founder of concussion connect podcast, host, and author of the Post Concussion Cookbook. She met with our June 2023 group meeting. She started Post Concussion Inc because she wants to help! Unlike most, I want to aid not only individuals who have suffered from concussions but also their families and friends. I spent months attempting to write a book, but since I could not read for the first few years when dealing with Post-Concussion Syndrome (PCS), it didn’t make much sense. The difficulty I had reading is also why the majority of my posts are short and to the point, as I want everyone to have the chance to finish reading. Post Concussion Inc became the perfect place to share the reality of everything related to concussions/minor traumatic brain injuries.
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